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Cerebral Palsy Patient Stories *

Martin Marinov, 5 Years Cerebral Palsy

Martin Marinov is a 5 years old child from Bulgaria who was delivered as a pre term baby and suffered asphyxia during child birth. Unfortunately the loss of oxygen for a few precious seconds resulted in some brain damage to the child leading to a condition known as Cerebral Palsy...

Jona Ghelli, 16 years, Cerebral Palsy

HOLLISTON - For most families, they're improvements that would largely go unnoticed - incremental steps in a child's development. But for the Ghellis, they're improvements that have always seemed out of reach until a recent trip to Germany. Jona Ghelli, a Holliston 16-year-old, has cerebral palsy and microcephaly, resulting in significant cognitive and physical impairments. She also suffers from a seizure disorder....

Avaia DiMarco, Cerebral Palsy

That's the biggest difference her mother has noticed since the community rallied to send the two-year-old for special bone marrow stem cell treatment. She had trouble paying attention before. Her eyes would wander constantly. Lights attracted her attention but not her focus. "Since we've been back, she's taking time to look at things, she's focusing a lot better, even on people's faces," Ashley DiMarco said....

Bence Puskás, 10 years, Cerebral Palsy

My name is Bence Puskas. I am 10 years old now. I was born prematurely but healthy. However, due to an infection, I suffered from brain hypoxia (not enough oxygen) that caused a central nervous system lesion. What does this mean?.
All of my limbs can move but still I can't walk unassisted. My eyes are intact but still I can't see normally...

Faaris Kutty, 3 years, Cerebral Palsy

Faaris was born at 25 weeks, weighing 798 g (1lb 11oz). He had a Hemorrhage in his Cerebellum at 4 weeks old and after spending 5 months in an NICU he was free to enter our world. We noticed that he was slow in his overall development and at one and a half Faaris was diagnosed with Cerebral Palsy...

Harrison Spiers and Dominic King "Dom and H", Cerebral Palsy

DENVER March 10, 2010 - What if? That's a question asked every day by people of all ages and all backgrounds. More than a year ago, two families from Denver decided to do something, to take a chance and find the answer to the big "What if" in their lives. Their quest began in late 2008 when Harrison...

Iker Chueca, 7 years, Cerebral Palsy

Iker Chueca is a 7 year-old boy who suffers from cerebral palsy. From early on, he was not able to walk or use his arms and hands properly. He has always had very limited cognitive skills, especially verbal and writing skills, although he's always been a very communicative and sympathetic child...

Jannat Abu Kaf, 5 years, Cereral Palsy

During birth, Jannat and her twin brother went through some complications that lead to lack of oxygen in the brain. At the age of 28 weeks, she was diagnosed with cerebral palsy. Jannat was in very poor condition. She was not able to sit alone. She could not stand and was not even able to crawl. Jannat also had problems with moving her hands...

Sophia Chang, 3 years old, Cerebral Palsy

Sophia is a 3.5 year old girl with a diagnosis of Ataxic Cerebral Palsy. She was induced at 39 weeks due to a low fetal heart rate. We do not know what caused the low fetal heart rate and we may never know. She appeared fine at birth but it became evident over the next few months that there was something wrong....

Christopher Giacobbe Wallet, 13 years, Cerebral Palsy

My 13-year-old son Christopher was born with Cerebral Palsy. He is comprehensively delayed and his development is that of an 8-year-old. Despite the strong physical restrictions, he is bound to a wheelchair and he is quite spastic, Christopher is in the 8th grade at a regular school. He uses a special keyboard on his computer and is supported by a full time assistant....

Hiba Imad Jaafar, 6 years, Cerebral Palsy

Hiba is a 6 year-old female who was born 3 months prematurely on 26/12/2004. Hiba recovered after 2.5 months in NICU ( nursery intensive care unit). At the age of 8 months, the family physician noticed that she was unable to control her lower extremities. This was confirmed by a pediatric neuro-specialist as a case of cerebral palsy. He recommended physiotherapy...

Ethan Radtke, 5 years, Cerebral Palsy

Ethan Radtke lies on his back on the living room floor and proudly crosses his legs. With a little prompting, he spreads them apart and pulls his knees up toward his chest. "Oh, that's so awesome. Gimme five!" says Tressica Hasbargen, his occupational therapist. The exercises may not seem that impressive to a stranger. But for this 5-year-old West Fargo boy, every new leg movement is a milestone...

Lujina Ebraheim, 4 years, Cerebral Palsy

"Lujie my 4 year old daughter back in Oct. 28th 2010.. Playing with blocks after the stem cell surgery at the clinic. She couldn't even maintain balance before the transplant then 2 weeks after the surgery she started walking on her own without any assistance."

Jacob Whitehouse, 10 years, Adrenoleukodystrophy

Our son Jacob was diagnosed in Oct 20099 with Adrenoleukodystrophy, a life threatening brain disease that affects boys in different ways. It affected Jacob's walking, talking, eating, etc.. The UK could not help us, so we searched the internet and found the XCell-Center. Jacob had his first stem cell treatment in February 2010, followed by physiotherapy at....

Myrthe Wallet, 6 years, Myocarditis and Brain Hypoxia

When Myrthe was eleven months old she became infected with an unknown virus. As it was hard for Myrthe to breathe the doctors first thought she had asthma. Then, her heart stopped beating for approximately ten minutes and...

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