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CCSVI/Multiple Sclerosis Patient Stories *

Caroline van der Lee, 37 years, CCSVI

CCSVI liberation angioplasty treatment results from Caroline van der Lee. After treatment for chronic cerebro-spinal venous insufficiency, Ms. van der Lee is now has better balance and can walk about twice as fast as before. She can perform everyday tasks such as getting in and out of her car with much more ease...

Stephan Steghaus, 47 years, MS - CCSVI

In the spring of 2010, I had for the 4th year in a row, dizziness, weakness and balance problems, which had been diagnosed previously as "Benign Paroxysmal Positional Vertigo" (BPPV), and treated with rocking head physiotherapy exercises. This would usually go away in about a month, mostly related I believe to me becoming more physically active in the spring, just like a bear coming out of his den as the snow melts...

Nicole Corry, 45 years, Multiple Sclerosis

I was diagnosed with MS in 2005 after a series of odd symptoms, including fatigue and dragging my left leg. At that point I was still working. I got progressively worse and more immobile until I had to retire in 2009. I found the clinic in Germany and applied for treatment. Luckily, I was accepted and began preparing to travel to germany in November 2009...

Russel Miller, 53 years, Multiple Sclerosis

I am a 53 year old man who has MS and I had my first major MS attack 15 years ago at age 37. I went off to the local GP with my symptoms and was misdiagnosed as having had a stroke. I was correctly diagnosed in 2000; 10 years ago. I was encouraged by my neurologist to start treatment using beta interferon to halt the progression of attacks which I did for 3 years...

Eileen Connolly, 58 years, Multiple Sclerosis

In 2006 I was diagnosed with primary progressive MS. I was advised by my doctor that there was no cure and treatment was available but it was totally ineffective. After some time I felt comfortable to investigate other options. While on the internet I came across the possibilitz of stem cell therapy, I read the patient stories and was delighted to see that they treated MS patients with varying degrees of success...

Laraine Sheers, 65 years, Multiple Sclerosis

I was diagnosed with MS in 2003 after the right side of my body became weak and my balance was unsteady. The local doctor sent me to a neurosurgeon who ordered an MRI and it confirmed the start of MS. The neurosurgeon suggested injections on a daily basis but I chose to take an alternative approach and after a hair analysis it was discovered I had mercury toxicity from the 14 amalgams I had in my mouth...

Kerrie O'Connor, 59 years, Multiple Sclerosis

My name is Kerrie O'connor. I am married and am 59 years of age. I have had Multiple Sclerosis for 19 years. I first realised something was amiss when, quite suddenly, I lost vision in my left eye and the left half of my body went quite numb. I went to my local doctor who in turn sent me to a neurologist. He did all the tests such as an MRI scan, lumbar puncture and a number of neuro tests. Then, I was told the news that I has MS...

Ray Burrill, 59 years, Multiple Sclerosis

I had been having walking problems, weakness with my left leg and foot and diminished fine motor skill in my left hand. I noticed a slight left foot drop and weakness in my left leg early in 2000. Being male, I did not admit that I had a problem. In late 2006, I decided that I had to do something about my walking problem and tried different spinal manipulation, acupuncture and chiropractic...

Alison French, 35 years, Multiple Sclerosis

Hello, my name is Alison French, I am 35 years old, a lady of course, and have had multiple sclerosis for the past 11 years. I was diagnosed with relapsing-remitting multiple sclerosis on the 14thOctober 1999. My ms had gone undiagnosed for about 4 years before 1999. So, the next ten years were a lot of trial and error. Trying different medications like beta interferons, rebif, and methylprednislone....

David Kannenberg, 54 years, Multiple Sclerosis

We were watching the fireworks on 4th of July 2001 when I first noticed that there was something wrong with me. I was sitting with my legs crossed and when I uncrossed them again, I felt numbness in my thigh that did not go away and progressed into the knee over the next couple of weeks. I lost feeling in both of my legs, you could stick a needle in my leg, I would not have felt it...

Philippe Daigueperce, 53 years, Multiple Sclerosis

In January 2006, coming back from a diving trip, I complained of tingling in my left forearm and sensory problems in my right forearm. A visit to the man who would become my physician, Dr. Tassou, encouraged me to do my first MRI. The radiologist detected a lesion on the second cervical, "but not near the spinal cord; in the spinal cord !"...

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