Country: Canada
Diagnosis
Faaris was born at 25 weeks, weighing 798 g (1lb 11oz). He had a Haemorrhage in his Cerebellum at 4 weeks old and after spending 5 months in the Neonatal Intensive Care Unit (NICU) he was free to enter our world. We noticed that he was slow in his overall development and at one and a half Faaris was diagnosed with Cerebral Palsy. Since his departure from the NICU he was receiving therapy and when he turned two we intensified his therapy by placing him in a private special needs school where he also receives daily physiotherapy, speech, occupational and music therapies. When Faaris was three we heard about stem cell treatment, and after a few months of research, we booked our date for his Lumbar Puncture. Before the treatment he could not say 2 word combination sentences, he could only pull up to stand and he had a lot of involuntary movements so much so that you would get vertigo just by watching him sit on a bench or on the toilet.
Stem Cell Treatment
We were impressed with the staff here who made us feel at home. They explained teh whole process in great detail and even showed us the physiotherapy department. On the day of the treatment, we were all nervous but it went well without any complications. We extended or stay for another 10 days so that Faaris could get the best chance of improvement and undergo a proper physiotherapy programme.
Results
Three months after the stem cells were implanted, to our great surprise we noticed significant improvement! One day while we were singing his favourite song, “Happy Birthday”, Faaris started singing along! Before, Faaris could only say “happy bir” and he could not ever say the end of that phrase, however, when we started singing it, that day, he just came right out and said in loud voice “Happy birthday to YOU!” He had never been able to say that nor could he put 4 words together!!! A week later he could sing “Twinkle Twinkle Little Star” in its entirety!
Even Faaris’s occupational therapist reported that he can now sit on a bench, toilet and chair without the involuntary movements!!! He is singing more songs and saying more sentences. He can also stand for a few seconds without support! HUGE PROGRESS in such a short time!
Six Months after the Procedure
Faaris has made some real gains in this last month. He is continuously saying 3-4 word sentences and making up his own too instead of repeating what we are saying. He is articulating verbally what he is thinking without throwing temper tantrums. He is pronouncing words better now. He is able to feed himself better with a fork. The best part is also with his cognition – He is standing straight and putting weight on his feet. For 3 -15 seconds can stand with no support which is a big steps as his knees used to buckle and he would not be able to stand at all.
Nine Months after the Procedure
So now it has been a year and Faaris is continuing to make progress. He is saying more word and getting better pronunciation. He is also pulling up to stand on a lot of different things as before it was only very specific items. He has also started to cruise which is something new for him. Cognitively he is able to grasp more social etiquette and is becoming aware of his will power which is a great milestone for him as he is not passive and knows what he wants and is communicating it effectively.
One year after the Procedure
Faaris is able to ride a bicycle which has some support for his trunk but he is able to co-ordinate the pedals and push them to move and he actually can ride around the neighborhood now! He is saying more sentences and is getting better and better in his communication skills. His retention for learning has really improved.
Conclusion
We are so happy that stem cell treatment exists and has given our son a better quality of life! *
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